Abstract
Introduction: Compassionate care is essential for the quality of care.
However, few studies in our
context address patients' perspectives on compassionate care. Objective: To explore
patients'
perceptions of the elements that constitute compassionate care. Materials and Methods:
A
qualitative approach using interpretive phenomenology. The participants were hospitalized adults.
Convenience sampling was used, with the sample determined by data saturation. Semi-structured
interviews were recorded, with prior informed consent and signed consent. Analysis was carried out
simultaneously with data collection, through the researchers' interpretation. Units of meaning were
identified for each participant and subsequently grouped according to common meanings.
Results:
Thirteen hospitalized patients participated, interviewed between January and June 2023. The
themes that encompass the meaning of compassionate care were Healing Presence, Compassion:
An Experience of Human Connection, Compassion as a Holistic Phenomenon of Caring, and The
Antonyms of Compassionate Care. Discussion: The topics are related to research findings
from
different contexts and clinical care settings. Differences and similarities are highlighted, broadening
the scope of the phenomenological interpretation of each case. Conclusion: Patient
education and
communication are central elements of compassionate care, enabling meaningful and humanized
relationships in care. The way healthcare providers communicate information and interact with
patients directly influences their perception of the care receive.
Keywords: Health Personnel; Inpatients; Professional-Patient
Relations; Empathy.
Resumen
Introducción: El cuidado compasivo es esencial para la calidad
asistencial. Sin embargo, pocos estudios en nuestro contexto abordan
la perspectiva de los pacientes sobre el cuidado compasivo. Objetivo:
Explorar la percepción que tienen los pacientes sobre los elementos
que configuran un cuidado compasivo. Materiales y Métodos:
Enfoque cualitativo desarrollado como fenomenología interpretativa.
Participaron adultos hospitalizados. Se empleó un muestreo por
conveniencia, con un número determinado por saturación de
los datos. Se realizaron entrevistas semiestructuradas grabadas,
previo consentimiento informado y firmado. Análisis desarrollado
simultáneamente a la recolección de información, a través de la
interpretación de los investigadores. Se identificaron unidades de
significado de cada participante que posteriormente se agruparon
según significados comunes. Resultados: Participaron 13 pacientes
hospitalizados, entrevistados entre enero y junio de 2023. Los temas
que agrupan el significado del cuidado compasivo fueron: Presencia
que sana, la compasión: una experiencia de conexión humana, La
compasión como fenómeno holístico del cuidado y los antónimos
del cuidado compasivo. Discusión: Los temas se relacionan con
hallazgos investigativos de diferentes contextos y entornos de
atención clínica. Se destacan diferencias y similitudes que amplían
el espectro de la interpretación fenomenológica realizada de cada
caso. Conclusión: La educación y la comunicación para los pacientes
son elementos centrales del cuidado compasivo, permiten establecer
vínculos significativos y humanizados en la atención. La forma en
que el personal de salud transmite información y se relaciona con los
pacientes influye directamente en la percepción del cuidado recibido.
Palabras Clave: Personal de Salud; Pacientes Internos; Relaciones
Profesional-Paciente; Empatía.
Resumo
Introdução: O cuidado compassivo é essencial para a qualidade da
assistência à saúde. No entanto,
poucos estudos em nosso contexto abordam as perspectivas dos pacientes sobre o cuidado compassivo.
Objetivo: explorar as percepções dos pacientes sobre os elementos que constituem o
cuidado compassivo.
Materiais e Métodos: Foi desenvolvida uma abordagem qualitativa como fenomenologia
interpretativa.
Os participantes foram adultos hospitalizados. Utilizou-se amostragem por conveniência, com o número
de participantes determinado pela saturação dos dados. Entrevistas semiestruturadas foram gravadas após
a obtenção do consentimento livre e esclarecido por escrito. A análise foi conduzida concomitantemente à
coleta de dados, por meio da interpretação dos pesquisadores. Unidades de significado foram
identificadas
para cada participante e, posteriormente, agrupadas de acordo com significados comuns.
Resultados:
Treze pacientes hospitalizados participaram, entrevistados entre janeiro e junho de 2023. Os temas que
agruparam o significado de cuidado compassivo foram: Presença Curativa, Compaixão: Uma Experiência
de Conexão Humana, Compaixão como um Fenômeno Holístico do Cuidado e Antônimos de Cuidado
Compassivo. Discussão: Os temas abordam resultados de pesquisas em diferentes contextos
e ambientes
clínicos. Diferenças e semelhanças são destacadas, ampliando o escopo da interpretação fenomenológica
de cada caso. Conclusão: A educação e a comunicação com os pacientes são elementos
centrais do cuidado
compassivo, possibilitando o estabelecimento de relações significativas e humanizadas no cuidado. A
forma como a equipe de saúde transmite informações e interage com os pacientes influencia diretamente
a percepção do cuidado recebido.
Palavras-Chave: Pessoal de Saúde; Pacientes Internados; Relações
Profissional-Paciente; Empatia.
Introduction
Health problems that lead to hospitalization often have a significant impact on
individuals, generating
physiological, psychological, and even social and spiritual changes. This occurs because of the
illness
itself and how it is perceived, the conditions of hospitalization, lack of knowledge,
uncertainty,
separation from the usual environment, and treatments1. Added to this are the characteristics of the
relationships established with healthcare staff, where depersonalization of care frequently
occurs, as
it tends to focus more on the disease than on the person suffering from it1,2. From the perspective
of the person-centered care model, it is proposed that care should focus on aspects that go
beyond
illness and be understood as a driving force for humanization that should permeate healthcare.
Thus,
compassionate care, as part of humanized care, becomes central to hospital care3.
The hospital setting is a complex environment where experiences of well-being and
suffering
converge, affecting the whole person1. The relationships between patients and
healthcare staff give
rise to diverse experiences, perceptions, and emotions, which significantly influence the
quality
of care provided2. When
dehumanized and depersonalized care focused on the illness occurs,
communication and empathy in the therapeutic relationship are impaired, which can negatively
impact the patient's experience and recovery process3. Conversely, compassion in care has been
shown to be associated with greater patient satisfaction, quality of life, and recovery, as well
as better
therapeutic relationships2,4.
Compassionate care in the hospital setting not only involves concrete actions related to the
diagnosis and treatment of people's morbid conditions, but also includes an empathetic attitude
of
understanding and full attention towards the patient and their family; in this regard,
compassion is
defined as “a virtuous response that seeks to address the suffering and needs of the person
through
understanding and relational actions”4. Compassion stems from the recognition of the
patient as a
unique individual with diverse needs, emotions and experiences that, when identified and managed
through the care process, contribute to comprehensive care and increased satisfaction with the
care
received5.
Compassionate care not only benefits the patient and their family, but also the
healthcare staff, by
reducing their levels of stress and emotional exhaustion associated with clinical care6. However, it
has been shown that healthcare professionals face challenges related to compassion fatigue and
emotional burnout, which can hinder the provision of compassionate care and, therefore,
negatively
affect the hospital experience of patients7,8.
From a healthcare perspective, compassionate care is considered an intrinsic part
of ethics for
healthcare professionals and is regarded as a hallmark of quality care and a patient’s
right6,9; unfortunately, in
many cases, the compassionate care patients receive is insufficient, affecting their
well-being, satisfaction, and perceived quality of care9. Hence, the importance of healthcare systems
in each context and culture, and the various entities that comprise them, understanding what
patients
mean by compassionate care, with a view to establishing strategies to promote it and establish
it as
part of the institutional and relational culture.
Evidence regarding the perceptions of care held by different actors in the
healthcare process, as well
as the impact of compassionate care, comes primarily from Anglo-Saxon or developed countries,
according to a recent systematic literature review9.
Few studies exist from Spanish-speaking contexts,
and even fewer from Latin American countries. Many of these studies focus on aspects such as
empathy rather than specifically compassion, or include non-clinical populations (e.g.,
students)9. In
Colombia, the available literature is mainly focused on community experiences10,11 and perceptions
from nursing staff12.
To our knowledge, no studies have been conducted in our context considering
our cultural characteristics to understand what those who receive compassionate care understand
by it, which differs from findings in studies from other regions. Therefore, this study seeks to
explore patients' perceptions of the elements that constitute compassionate care in a tertiary
care
institution in Medellín, Colombia, based on their experiences interacting with healthcare staff
during their
hospitalization. The aim is to propose actions to promote compassionate care in the hospital
setting.
Materials and Methods
Type of study
This qualitative research study was developed as an interpretive phenomenology that integrates
three philosophical traditions: phenomenology, hermeneutics, and ideography to develop a
systematic method that analyzes how people give meaning to significant experiences, through a
double hermeneutics and a deep approach to each case13. Through this method, the study sought to
interpret the perception of compassionate care held by hospitalized individuals in a
high-complexity
health institution in the city of Medellín (Colombia), which has an internal humanization policy
and is
a reference point for all municipalities in the department of Antioquia.
Participants
The study population consisted of 13 individuals hospitalized in a tertiary care institution
during
the first half of 2023. Inclusion criteria were being hospitalized for at least three days and
being
an adult, willing to participate voluntarily. Exclusion criteria included: individuals with
neurological
impairment that limited their participation, those under isolation, those with a serious
illness, those
with difficulty communicating verbally, or those who did not understand Spanish.
Data collection instrument and procedure
Participant recruitment was conducted using convenience and purposive sampling. Lead nursing
professionals in inpatient services were contacted by patients who met the eligibility criteria.
After
receiving approval from the professional, the researchers met with the patient and their
companion in
the patient's room, explained the study, its objectives, purpose, and potential benefits for
continuous
improvement of care. The patient was then invited to participate, and if they agreed, the
informed
consent form was provided. After reading it and addressing any questions, the patient and their
companion were asked to sign the consent form. The patient's privacy, comfort, and health status
were considered. It was clarified that they could end the interview at any time if they wished
and
that the information obtained would be safeguarded by the researchers and the names would not
be disclosed. All interviews were conducted by MCG (MSc), a practicing psychologist with
clinical and
research training. The initial interviews were assisted by psychosocial professionals (MCV and
AK) and
a nurse (FL), all with experience in research interviews.
The semi-structured interviews were conducted using a guide of open-ended
questions designed to
initiate the conversation: (1) What does compassionate care mean to you? (2) Do you believe that
the
care you have received during this hospitalization has been compassionate? (3) What do you do or
what
would you do to make the care you receive compassionate? (4) During your current
hospitalization,
what experiences have you had that you would describe as compassionate care? (5) During your
current hospitalization, what experiences have you had that do not constitute compassionate
care?
(6) What do you believe are the effects on your well-being of receiving, or conversely, not
receiving compassionate care during your hospitalization? With some participants, further
questions arose to
deepen the understanding of emerging themes. The interviews lasted between 30 and 45 minutes,
were recorded, and then transcribed. Aspects such as nonverbal language, pauses, silences,
changes
in tone of voice, and emotional responses were recorded, as well as the times they occurred. An
identification code was established for each interview to preserve the participant's anonymity.
Analysis
The analysis was developed concurrently with data collection. The researchers interpreted each
participant's significant experience, based on Interpretive Phenomenological Analysis
(IPA)13.
Each interview was transcribed into a separate Word file, named with the code
assigned to each
participant. The transcription was done by MAG and MZ, who did not participate in the
interviews.
Subsequently, each researcher carefully reviewed each interview, identifying key ideas and
concepts
that allowed them to interpret each participant's significant experience of compassionate care.
The researchers then shared their findings with each participant, which helped identify similar
interpretations and reduce related biases.
Based on the themes that emerged from the researchers' interpretation and the
similarities in the
findings and testimonies, each participant's results were grouped into overarching themes that
best
represented their perception of compassionate care. Subsequently, according to the similarities
and commonalities among the themes and meanings found among the participants, the researchers
defined four overarching themes that represented the perception of compassionate care for all
the patients who participated in the study. Finally, they described each participant's
perception
of compassionate care within the framework of these four overarching themes resulting from their
interpretation.
It was not possible to share the transcripts with the participants to adjust,
given their discharge from
the healthcare facility and the fact that most of them resided in other municipalities. The
interview did
not include the patient's contact information. However, during the interview, the patient's
responses
were paraphrased to confirm the interviewer's initial interpretation.
The study's rigor criteria were applied across all stages to strengthen the
internal and external
validity of the results: (1) credibility, achieved by establishing trusting relationships with
participants
and triangulating researchers throughout the research process; (2) transferability, describing
the conditions under which the research was conducted to allow other researchers to assess the
applicability of the findings in similar contexts; (3) reliability, documenting the research
process in
analysis matrices that allow for external auditing and replicability of the study; (4)
confirmability, using
triangulation of disciplinary perspectives from psychology and nursing to enrich the
understanding
of the phenomenon from different approaches to care14.
The study was approved by the Health Ethics Committee of the Universidad
Pontificia Bolivariana
(minutes 3 of 2022), and participants signed informed consent forms. According to Resolution
8430 of
1993 (Colombia), it was classified as minimal risk15. Bioethical principles were respected and
applied
throughout the research process. All collected data are freely available for access and
consultation on Mendeley Data16.
Results
All participants invited to the study agreed to participate (n=13). On average, they
were 45.77 years
old and had been hospitalized for an average of 13.62 days. Their demographic, social, and health
characteristics are described in Table 1.
Table 1. Demographic, social and health characteristics of the participants
X
Table 1. Demographic, social and health characteristics of the participants
| ID |
Sex
|
Age |
Socioeconomic
level
|
Days of
hospitalization |
Reason for hospitalization |
|
1
|
Female |
47 |
Medium low |
8 |
Genitourinary
disorders |
|
2
|
Female |
56 |
Half |
22 |
Pulmonary alterations
|
|
3
|
Male |
38 |
Low |
7 |
Gastrointestinal
disorders |
|
4
|
Female |
39 |
Medium low |
5 |
Gastrointestinal
disorders |
|
5
|
Female |
59 |
Medium low |
3 |
Gastrointestinal
surgeries |
|
6
|
Female |
53 |
Medium low |
12 |
Cardiovascular
disorders, |
|
7
|
Male |
55 |
Low |
15 |
Pulmonary alterations
|
|
8
|
Male |
60 |
Half |
23 |
Pulmonary alterations
|
|
9
|
Female |
20 |
Half |
22 |
Gastrointestinal
disorders |
|
10
|
Female |
45 |
Low |
5 |
Gastrointestinal
disorders |
|
11
|
Female |
37 |
Low |
8 |
Genitourinary
disorders |
|
12
|
Female |
36 |
Medium low |
17 |
Pelvic surgery |
|
13
|
Female |
50 |
Low |
30 |
Metabolic disorders
|
The analysis yielded four themes or constituent elements of compassionate care: “Healing Presence”,
“Experience of Human Connection”, “Holistic Phenomenon of Care”, and “Antonyms of
Care”,, resulting from
the researchers' interpretation of each participant's individual perception of compassionate care.
The feature that became one of the central themes, emerging from the personal experience of several
patients, and encompassing a diversity of concepts and constitutive aspects of compassion, was:
“Healing Presence”..
For one of the patients, feeling that the healthcare staff is attentive to their progress, their needs,
and
the result of their treatment translates into feelings that make their hospital stay more positive.
While
an immediate recovery doesn't occur, these attitudes do help them feel supported and cared for. As
they explain:
“They care a lot about the patient, more than they should…very good care, very attentive. “How are
you feeling? How are you or how do you feel about the baby?” Everyone is very attentive…the way
and the effort they put into caring for the patient, making the patient feel accompanied, making the
patient feel well, I think” (FF5, DD6)
The healing presence means that healthcare staff demonstrate interest in and attentiveness to
the
patient's recovery process, their symptoms, and any potential risks associated with their treatment.
This might be considered a normal process, part of what should be or should be done, but when
healthcare staff express this interest in connecting with the other person and care about how they
feel, this interest is perceived by the patient as a genuine presence that facilitates their journey
toward
recovery. This is how they express it:
“I mean, they’re very attentive. … They always ask me if I’m in pain, how I feel, how I’m doing. If
I’m
going to surgery, they wish me well, they’re very attentive when I get back from surgery… They worry
that I’m okay or that I’m not going to have a drug relapse and all that, well, they come and check
on me
every day to make sure I’m okay and… you know what I mean?... (GG 4,6,2.)
Compassionate care is understood by another participant as the presence of staff, which is not limited
to the number of activities typical of a hospital setting. For him, this presence manifests as a
constant
concern for the patient's well-being and the prevention of any risk that could harm him; in this way,
the entire care team exerts a healing presence. This is how it is interpreted in the following
testimony:
I mean, even though they're busy with their own things, they don't forget that there's a sick
person
here. I think that's really nice... And they're always thinking, "Look, be careful not to drop it,
it's wet
here," "Okay, be careful, look at this," "Remember that..." You know what I mean? For me, all of
that is
done with care, and not just by the head nurse, but even the cleaning lady, even the orderly,
they're
concerned about the smallest things. They come and say, "Are you going to stay with her?" "Well, I
hope
you're well soon," you know, "Have a good night." (KK 9,20,24)
Another theme that emerged from the analysis of some patients' perceptions of compassionate care
is Compassion, an experience of human connection.". For them, the presence, and especially the
way in
which the healthcare staff interacts with them during their care and recovery process, goes beyond
simply fulfilling their job duties.
One of the participants senses that the behavior of the healthcare staff not only
responds to the
tasks inherent in their work but goes beyond that; he perceives it as a genuine feeling of connection
with their needs that increases his satisfaction with the care, because it makes him feel valued. He
expresses it this way:
“Compassion is like concrete love at work. The love with which they arrive every morning or every
night.
“How are you? Are you in pain? I’m going to give you this medicine, we’re also going to take these
pills,”
it’s very close care, yes, they have their profession, but in addition to that, they show affection
to one…
(HH 9,7,6)
Compassion is understood as an experience of human connection that always manifests
itself,
especially when the patient is most vulnerable, making them feel like a person regardless of the care
that must be provided to achieve this. This is how one of the participants perceives it:
…Another thing that makes you say “wow,” when they’re going to clean you up and it’s like, with that
love or respect, like, not like, just like that, never, it’s always “Hey, relax, I’m here for that,
I’m going to
help you a lot, that’s doing things with love. (DD 7,6)
Compassion, in turn, is understood as an experience of human connection insofar as it
involves
individualized care that considers personal history. This care is not only defined for each case but is
also adapted to the individual's particularities, prior experiences, needs, fears, and expectations.
This,
in turn, is not possible without a genuine interest in the well-being of the other person. This is how
the experience recounted by one participant is interpreted:
“I feel cared for because there’s something very beautiful and special here, and that is that for me,
this
hasn’t been an easy pregnancy after the death of my son, with the fear that the same thing would happen
to
me. So, what’s beautiful here is that they understand, they care a lot about making sure you
feel good, that the baby is okay. I think it’s a very beautiful hospital in that sense…giving you
strength,
making you feel heard, understood…because the strength they’ve given me is immense. The way they
treat me, allowing Juan to be by my side here, makes me feel very good. I’m truly happy here, I really
love it for that reason (EA 6,4,18,35)
Compassion, understood as an experience of human connection, was interpreted by one of
the patients
as closeness and familiarity with the healthcare staff, especially when he perceived gestures that
evoked his relationship with his own family. This is how one of the participants described it:
“When they hear the baby, they are very loving, they say: ‘Where are you
going?’ Then they find him
and they always do it in the best way, they never look unhappy, no.... it is as if they were not
doing it for
someone they know, it is as if they were doing it for a child, for a sister, a family member, they
do it with
love and passion, that is the most important thing. (EF 4,9,10)
Another theme that describes the patient's perception is compassion as a holistic
phenomenon of care.
Holistic in that it transcends the satisfaction of basic care needs, which is generally and
homogeneously
addressed; it focuses on the human aspect, on a genuine interest in contributing to other realities
that afflict the patient and hinder their recovery. One of the participants perceives it this way:
“For my health, it has really helped me a lot emotionally as well, because
when you're emotionally well,
even your body feels better. When you feel calm and happy, everything seems to flow. Yes, because
sometimes you're very sad, and your platelet count drops, your spirits plummet, and everyone has
been
interested in helping me with that, too. (EE6, AA4)
For another participant, compassion is a holistic aspect of care, insofar as it considers
the patient's
family as part of the attention they receive. Showing interest in the family's well-being is significant
for the patient because it minimizes the worries that arise from hospitalization. As they explain:
“The comfort of the companion, yes, the one who comes to take care of you,
that they make sure he can
accompany me, that they give him a chair so he is more comfortable, that was very good… because he
had nowhere to stay and that made me feel bad…” (CC 4 DD 2,23)
The antonyms of compassionate care represent another interpretation of the
term for patients,
understood as impersonal or dehumanized care provided without regard for emotional, spiritual,
or personal needs. One patient's experience suggests that not being listened to by healthcare staff
generates uncertainty and dissatisfaction with the care received.
“He operated on me, he was late coming, and when he arrived, he said, ‘Oh, you are relieved because you
are talking on your cell phone,’ and literally ‘I’m discharging you’ without examining me or anything,
and I felt like, ‘What?’ He didn’t even ask me how I was doing, nothing, and he discharged me.”
(CC1)
For another patient, the opposite of compassionate care can be interpreted as
the one-way
communication established by some health professionals that limits their understanding and
participation in the care and recovery process.
“…Ah, yes, for example, the doctor who comes and knows that I have the
fracture and doesn’t explain
it to me well… he doesn’t specify well and just tells me that I have to operate and that’s it, and
if you ask him a question, maybe they answer you or if not they leave you with the doubt and they
don’t explain
the situation of how you are” (CC 4, 11)
The findings identified that one of the antonyms of compassionate care is
reflected in the inadequate
communication of some health professionals when delivering clinical diagnoses, characterized using
derogatory terms and language lacking humanization, as interpreted from the testimony of one of
the participants.
“The doctor who diagnosed me with diabetes was very tough, the toughest in the
whole world. We
were in the emergency room, and he said to me: ‘Welcome to the world of diabetics’.” (JJ 9,10).
Discussion
This study explored the perceptions of 13 patients regarding the elements that constitute
compassionate care, based on their relational experiences with healthcare staff during hospitalization.
Four themes—healing presence, the experience of human connection, the holistic phenomenon of
care, and the antonyms of care—were established as points of convergence between the patients'
perceptions and the researchers' interpretations.
The meaning of “ Healing Presence,” as interpreted from the perceptions of four
participants, aligns
with the findings of the study conducted by Hermosilla-Ávila et al.17, which identified that the main
strategies for meeting the comfort needs of palliative care patients were support, physical contact,
affection, communication, knowledge, kindness, contact with nature, and contact with other people.
The attitude adopted by healthcare staff can have a positive effect on the patient's well-being; the
study concludes that non-pharmacological interventions, which may seem trivial and technologically
simple, such as availability, affection, and support, have the capacity to significantly impact
patients'
comfort.
Similarly, another participant highlights close and compassionate communication as an
element
that fosters trust and tranquility in the recovery process. Cecconello et al.18
note that terminally ill
patients experience physiological, psychosocial, and spiritual changes, requiring special care aimed
at reducing suffering and improving quality of life, such as simple, frank, and honest communication
and active listening. The authors indicate that healthcare personnel should offer comfort measures
and care practices, but also be supported by an interdisciplinary team dedicated to promoting
well-being. Thus, these results underscore the importance of implementing actions that improve
communication within the healthcare team, which can help alleviate the physical and/or emotional
suffering of patients.
Similarly, the Healing Presence was related to the levels of satisfaction that
one of the patients had with
the care received. In this regard, several studies have found that user satisfaction with the care
provided
by healthcare staff, specifically nursing staff, ranges between 60 and 90%, and define satisfaction as
a state in which the brain produces a feeling of fullness, accompanied by rational security, producing
in the patient a positive perception of the quality of care received19-22, Understanding that this
transcends what happens in the therapist-patient relationship and implies changes and commitment
in the organizational culture of health institutions and systems.
Compassion, for one of the participants, is an experience of human connection,
which is reflected in
the well-being and peace of mind that the healthcare staff provides to help patients cope with their
in-hospital care. It has been found that, in care relationships focused on the well-being of the other,
what is called “intelligent compassion” can emerge, a form of active empathy that combines sensitivity
with clinical judgment23.
Literature uses this concept to understand compassion and defines it as
an attitude toward others that encompasses feelings, cognition, and behaviors centered on care,
concern, tenderness, and an orientation toward supporting, helping, and understanding others,
especially when suffering and need are perceived. Furthermore, a compassionate mindset includes
attitudes and actions related to kindness, warmth, gentle treatment, and affection, among others24. Even from a
neurobiological perspective, compassion is closely linked to limbic motivation and brain
reward circuits, resulting in a profound and finely tuned self-regulation6; an experience considered
highly effective for stress reduction, survival, and overall health24,25.
This study also revealed that for two of the participants, compassion is not limited to
the satisfaction
of basic needs but rather manifests as a holistic phenomenon of care
that transcends institutional
protocols and focuses on their overall well-being and that of their families. This result is consistent
with findings from other studies, which have demonstrated that patient-centered care, considering
their physical, emotional, and social needs, is associated with better clinical outcomes and greater
satisfaction26, and that
family involvement in patient care improves the quality of care and contributes
to a faster and more successful recovery27.
The perceptions of care received by three of the participants were interpreted as
antonyms
of compassionate care, describing feelings of dehumanization, one-way communication, and
misinformation from healthcare staff. Some studies28-30 have found a lack of closeness between
healthcare staff and patients and/or caregivers, a distance that translates into a lack of emotional
understanding and unmet needs, delays in care, and a lack of empathy. This phenomenon, also
described as impersonal care, is a problem that negatively affects the patient experience and
their perception of the quality of care received31.
It leaves patients physically and psychologically
vulnerable, generating a feeling of distrust toward the healthcare system and its professionals29. Furthermore, dehumanized
care is associated with decreased patient satisfaction and reduced
adherence to medical treatment, feelings of fear, insecurity and apprehension30,31.
While this is a novel study in the Spanish-speaking world, given its emphasis on
patients' own
perceptions of the care they received, it is important to consider its limitations. One limitation of
the
study is that it was conducted in a single healthcare institution where the staff is specifically
trained
in compassionate care and the humanization of care; therefore, patients may have a more positive
perception of the care they receive. Furthermore, the heterogeneity and size of the sample, along
with the fact that there was no opportunity to verify the transcribed information with the patients,
can be considered a methodological limitation of the study.
Conclusions
It was interpreted that compassionate care, or its absence, on the part of healthcare
staff is clearly
perceived by patients through the communicative relationship established. This finding opens a
valuable space for research and management processes to be geared toward concrete improvements
in the quality of care provided by the healthcare team.
Education and communication with patients are central elements of compassionate care,
allowing
for the establishment of meaningful and humanized relationships in care. The way healthcare staff convey
information and interact with patients directly influences their perception of the care they
receive.
The researchers explicitly acknowledge their reflexivity as researchers, recognizing that
personal
experiences and perspectives influenced the interpretation of the findings. Furthermore, they have
articulated the emerging themes as interrelated phenomenological structures, which has allowed
them to understand the participants’ lived experience in its complexity and depth, respecting its
holistic meaning.
Conflict of interest: The authors declare that they have no conflict of
interest.
Funding: The study “Compassionate Care: An Exploration of the
Perceptions of Patients and Healthcare
Staff at a High-Complexity Center in the City of Medellín,” from which this manuscript is derived, did
not receive any funding.
Author contributions: FELH: Conceptualization; Data curation; Formal
analysis; Investigation;
Methodology; Supervision; Validation; Visualization; Writing—original draft preparation; Writing—
review and editing. MAGD: Data curation; Formal analysis; Visualization; Writing—original draft
preparation; Writing—review and editing. MZP: Data curation; Formal analysis; Visualization;
Writing—original draft preparation; Writing—review and editing. MCG: Conceptualization; Data
curation; Investigation; Methodology; Validation; Visualization; Writing—original draft preparation;
Writing—review and editing. MCV: Conceptualization; Investigation; Methodology; Writing—review
and editing. AK: Conceptualization; Investigation; Methodology; Project administration; Supervision;
Validation; Visualization; Writing—original draft preparation; Writing—review and editing.
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