Understanding Vision Rehabilitation: A Perspective from People with Low Vision

Authors

DOI:

https://doi.org/10.15649/cuidarte.1139

Keywords:

Vision, Low, Rehabilitation Services, Rehabilitation Research, Treatment Outcome, Rehabilitation Research, Health Services for Persons with Disabilities

Abstract

Introduction: Low vision is a category of visual impairment that needs a rehabilitation process to maximize visual function and provide the individual with compensatory skills to improve their functioning. Objective: To describe the perception of people with low vision who received functional vision rehabilitation in two rehabilitation centers in relation to service provision and barriers identified in the process. Materials and Methods: A qualitative exploratory study was conducted using 14 semi-structured interviews in people who received low vision rehabilitation in two rehabilitation centers: one in Bogotá providing interdisciplinary vision rehabilitation and another in Bucaramanga with less interdisciplinary vision rehabilitation. After analysis, data were recovered, classified and transformed. Results: People who attended the less interdisciplinary rehabilitation center recognized the contribution of rehabilitation for basic and instrumental activities of daily living. Those who attended the rehabilitation center providing greater interdisciplinary vision rehabilitation highlighted the contributions made from the psychology, orientation and mobility skills, and social work fields as essential. Despite this, barriers still exist in both cities: difficulties in acquiring optical, mobility and architectural aids, as well as in labor inclusion. Discussion: There is a clear need to ensure interdisciplinary vision rehabilitation that includes additional interventions for optical aid prescription. Conclusion: Best results are obtained by interdisciplinary vision rehabilitation in terms of transformations that individuals achieve in acceptance of the low vision condition, mobility, access to technology and rights recognition.

How to  cite this article: Oviedo-Cáceres María del Pilar, Hernández-Padilla Martha Liliana, Suárez-Escudero Juan Camilo. Percepción de la rehabilitación visual:  Una mirada desde las personas con baja visión. Revista Cuidarte. 2021;12(1):e1139. http://dx.doi.org/10.15649/cuidarte.1139     

Author Biographies

María del Pilar Oviedo-Cáceres, Universidad Santo Tomás, Bucaramanga, Colombia

Universidad Santo Tomás, Bucaramanga, Colombia

Martha Liliana Hernández-Padilla, Universidad de Antioquia, Medellín, Colombia

Universidad de Antioquia, Medellín, Colombia

Juan Camilo Suárez-Escudero, Universidad Pontificia Bolivariana. Medellín, Colombia

Universidad Pontificia Bolivariana. Medellín, Colombia

References

Bourne RRA, Flaxman SR, Braithwaite T, Cicinelli MV, Das A, Jonas JB, et al. Magnitude, temporal trends, and projections of the global prevalence of blindness and distance and near vision impairment: a systematic review and meta-analysis. Lancet Glob Health 2017;5:e888–e897. https://doi.org/10.1016/S2214-109X(17)30293-0

Guisasola, L. Informe de la Salud Visual en Sudamérica 2008 — Cátedra UNESCO de Salud Visual y Desarrollo — UPC. Universitat Politècnica de Catalunya, (2008, accessed 3 June 2018). https://unescovision.upc.edu/es/materiales/materiales-de-la-catedra/investigacion/savim/informe-de-la-salud-visual-en-sudamerica-2008/view

Brody BL, Roch-Levecq A-C, Kaplan RM, Moutier CY, Brown SI. Age-related macular degeneration: self-management and reduction of depressive symptoms in a randomized, controlled study. J Am Geriatr Soc 2006;54:1557–1562. https://doi.org/10.1111/j.1532-5415.2006.00881.x

Kempen GIJM, Ballemans J, Ranchor AV, van Rens GHMB, Rixt Zijlstra GA. The impact of low vision on activities of daily living, symptoms of depression, feelings of anxiety and social support in community-living older adults seeking vision rehabilitation services. Qual Life Res. 2012;21:1405–1411. http://dx.doi.org/10.1007/s11136-011-0103-5

Organización Mundial de la Salud. Informe mundial sobre la visión [World report on vision]. Ginebra: Organización Mundial de la Salud.

Rojas S, Ruiz S, Carvajal J, Alvarez MJ, Duque D, Correa AS., et al. Caracterización de una población con discapacidad visual (baja visión y ceguera) atendida en dos Instituciones Prestadoras de Salud de Medellín. Medicina UPB 2015;34:30–39. Disponible em: https://revistas.upb.edu.co/index.php/medicina/article/view/1369

Hernández-Moreno L, Senra H, Lewis P, Moreno N, Linhares J, Santana R, et al. Cost-effectiveness of basic vision rehabilitation (The basic VRS-effect study): study protocol for a randomised controlled trial. Ophthalmic Physiol Opt 2020;40:350–364. https://doi.org/10.1111/opo.12665

Laliberte Rudman D, Egan MY, McGrath CE, et al. Low Vision Rehabilitation, Age-Related Vision Loss, and Risk: A Critical Interpretive Synthesis. Gerontologist 2016;56: e32-45. https://doi.org/10.1093/geront/gnv685

Binns AM, Bunce C, Dickinson C, Wolffsohn J, Hughes L, Margrain TH .How Effective is Low Vision Service Provision? A Systematic Review. Survey of Ophthalmology 2012; 57: 34–65. https://doi.org/10.1016/j.survophthal.2011.06.006

Virtanen P, Laatikainen L. Primary success with low vision aids in age-related macular degeneration. Acta Ophthalmol (Copenh) 1991;69:484–490. https://doi.org/10.1111/j.1755-3768.1991.tb02026.x

Haymes SA, Johnston AW, Heyes AD. Preliminary investigation of the responsiveness of the Melbourne Low Vision ADL index to low-vision rehabilitation. Optom Vis Sci 2001;78: 373–380. https://doi.org/10.1097/00006324-200106000-00008

Lamoureux EL, Pallant JF, Pesudovs K, Rees G, Hassell JB, Keeffe JE. The effectiveness of low-vision rehabilitation on participation in daily living and quality of life. Invest Ophthalmol Vis Sci 2007;48:1476–1482. https://doi.org/10.1167/iovs.06-0610

Oviedo Cáceres MP, Hernandez M, Ruiz Rodriguez, M. Capacidad instalada de centros de atención en baja visión en Colombia. Revista Ustasalud Optometría. 2012;12:21-30.

Oviedo-Cáceres M, Hernández-Padilla M, Ruiz-Rodriguez M. Baja visión en Colombia: una situación invisible para el país. Rev Fac Nac Salud Pública 2015;33:22–30.

Britten N. Qualitative interviews in medical research. BMJ 1995; 311: 251–253. https://doi.org/10.1136/bmj.311.6999.251

Taylor SJ, Bogdan R. Introducción a los métodos cualitativos de investigación: la búsqueda de significados. Grupo Planeta (GBS), 1987.

Martínez-Salgado C. El muestreo en investigación cualitativa. Principios básicos y algunas controversias. Ciênc. Saúde Coletiva 2012;17(3):613-619. https://doi.org/10.1590/S1413-81232012000300006

Van Nispen RMA, Virgili G, Hoeben M, Langelaan M, Klevering J, Keunene JEE, et al. Low vision rehabilitation for better quality of life in visually impaired adults. Cochrane Database of Systematic Reviews. 2020, Issue 1. Art. No.: CD006543. https://doi.org/10.1002/14651858.CD006543.pub2

van der Aa HPA, Margrain TH, van Rens GHMB, Heymans MW, van Nispen RMA. Psychosocial interventions to improve mental health in adults with vision impairment: systematic review and meta-analysis. Ophthalmic Physiol Opt 2016;36:584–606. https://doi.org/10.1111/opo.12313

Hahn H. The Politics of Physical Differences: Disability and Discrimination. Journal of Social Issues. 1988;44(1):39–47. https://doi.org/10.1111/j.1540-4560.1988.tb02047.x

World Health Organization. Rehabilitación 2030: Un llamado a la acción. Nota conceptual. 2017, p. 2.

Ryan B, Khadka J, Bunce C, Court H. Effectiveness of the community-based Low Vision Service Wales: a long-term outcome study. Br J Ophthalmol 2013;97:487–491. https://doi.org/10.1136/bjophthalmol-2012-302416

Stelmack JA, Tang XC, Reda DJ, Rinne S, Mancil RM, Massof RW. Outcomes of the Veterans Affairs Low Vision Intervention Trial (LOVIT). Arch Ophthalmol 2008;126:608–617. https://doi.org/10.1001/archopht.126.5.608

Coco-Martín MB, Cuadrado-Asensio R, López-Miguel A, Mayo-Iscar A, Maldonado MJ, Pastor JC. Design and evaluation of a customized reading rehabilitation program for patients with age-related macular degeneration. Ophthalmology 2013;120:151–159. https://doi.org/10.1016/j.ophtha.2012.07.035

World Health Organization. International Standards for Vision Rehabilitation: report of the International consensus Conference. Rome: World Health Organization.

van der Aa HPA, Comijs HC, Penninx BWJH, van Rens GHMB, van Nispen RMA. Major depressive and anxiety disorders in visually impaired older adults. Invest Ophthalmol Vis Sci 2015;56:849–854. https://doi.org/10.1167/iovs.14-15848

Horowitz, A., & Reinhardt, J.P. Adequacy of the Mental Health System in Meeting the Needs of Adults Who Are Visually Impaired. JVIB. 2005;100(1_suppl):871-874. https://doi.org/10.1177/0145482X0610001S13

Anaya G. Discapacidad, sistemas de protección y Trabajo Social, (accessed 3 June 2018). Disponible en: https://www.alianzaeditorial.es/libro.php?id=3837918%26id_col=100508%26id_subcol=100519

Gómez M del PM. Trabajo Social en la defensa de los derechos sociales de las personas con discapacidad. Trabajo Social 2012;0:93–104.

Campos SMR. Discapacidad en clave decolonial: Una mirada de la diferencia. Revista de Estudos AntiUtilitaristas e PosColoniais 2015;5:175–202.

Cuesta Ó, Meléndez-Labrador S. Discapacidad, ciudad e inclusión cultural: consideraciones desde la comunicación urbana. EURE (Santiago) 2019;45:273–282. http://dx.doi.org/10.4067/S0250-71612019000200273

Published

2020-11-13

How to Cite

1.
Oviedo-Cáceres M del P, Hernández-Padilla ML, Suárez-Escudero JC. Understanding Vision Rehabilitation: A Perspective from People with Low Vision. Revista Cuidarte [Internet]. 2020 Nov. 13 [cited 2024 Jul. 3];12(1). Available from: https://revistas.udes.edu.co/cuidarte/article/view/1139

Issue

Section

Investigation Article

Categories

Altmetrics

Downloads

Download data is not yet available.