Design of a mobile application for home monitoring of babies with complex congenital heart disease



Palabras clave:

Health, Technology, Pediatrics, Complex Congenital Heart Diseases, Home-Based Monitoring


  • With this app the caregivers will demonstrate competence to monitor the conditions of their baby who has complex congenital heart disease at home.
  • The use of this app will allow babies participating in the monitoring program to have optimized growth and care.
  • Management of this app will prevent readmission for major and unforeseen medical events.
  • This app provides comprehensive pre-discharge education to caregivers.

Introduction: Congenital heart diseases are related to heart defects that develop during pregnancy and are present at birth. Children must regularly attend specialized clinical centers for treatment, which includes medical check-ups, hemodynamic procedures, and surgery. Nevertheless, the success of interventions largely depends on the education of parents and caregivers about the symptoms and warning signs that babies with complex congenital heart disease may present during the period between stages. Likewise, it is necessary for caregivers to have tools to face the barriers of the health system, such as, obstacles or delays in obtaining healthcare services. This facilitates timely health care for patients and avoids fatal outcomes or deterioration in quality of life. Materials and Methods: This document presents a system that provides support to patients with complex congenital heart disease in follow-up by a home monitoring program. The system consists of a mobile application that allows parents/caregivers to monitor physiological variables of the patients (weight, intake, and oximetry). The information registered in the application is sent for real-time evaluation by the medical team. Results:The application provides an effective means for sending data and communicating with the medical control center, in addition to offering educational and informative material. In this way, parents/caregivers get constant help and feedback about their baby's condition. Conclusions: The mobile application could help mitigate the costs of medical care and overcome the limitations of follow-up at home, giving doctors the possibility to see the patient's evolution and give timely recommendations.

How to cite this article: Castro David, Pérez-Rivero Paula, Quintero-Lesmes Doris Cristina, Castro Javier. Design of a mobile application for home monitoring of babies with complex congenital heart disease. Revista Cuidarte. 2022;13(3):e2335.       

Biografía del autor/a

David Castro , Fundación Cardiovascular de Colombia


Paula Pérez-Rivero, Universidad Pontificia Bolivariana


Doris Cristina Quintero Lesmes, Fundación Cardiovascular de Colombia

Fundación Cardiovascular de Colombia, Floridablanca, Colombia. 

Javier Castro, Fundación Cardiovascular de Colombia



Tregay J, Brown KL, Crowe S, Bull C, Knowles RL, Smith L, et al. Signs of deterioration in infants discharged home following congenital heart surgery in the first year of life: a qualitative study. Arch Dis Child 2016; 101:902–908.

Ministerio de Salud y Protección Social. Análisis de Situación de Salud (ASIS) Colombia, 2015. Imprenta Nacional de Colombia; 2015.

Urencio M, Greenleaf C, Salazar JD, Dodge-Khatami A. Resource and cost considerations in treating hypoplastic left heart syndrome. Pediatric Health Med Ther. 2016;7:149-153.

Ghanayem NS, Hoffman GM, Mussatto KA, Cava JR, Frommelt PC, Rudd NA, et al. Home surveillance program prevents interstage mortality after the Norwood procedure. J Thorac Cardiovasc Surg. 2003; 126(5): 1367-77.

Pino P, Váldes C, Fajuri P, Garrido O, Castillo A. Propuesta de un programa educativo para padres de niños con cardiopatías congénitas. Arch Argent Pediatr 2014;112(5):451-456.

Ghanayem NS, Cava JR, Jaquiss RD, Tweddell JS. Home monitoring of infants after stage one palliation for hypoplastic left heart syndrome. Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu 2004; 7:32–8.

Ghanayem NS, Tweddell JS, Hoffman GM, Mussatto K, Jaquiss RDB. Optimal timing of the second stage of palliation for hypoplastic left heart syndrome facilitated through home monitoring, and the results of early cavopulmonary anastomosis. Cardiol Young. 2006;16 (Suppl 1):61–6.

Lei H, Ganjeizadeh F, Jayachandran PK, Ozcan P. A statistical analysis of the effects of scrum and kanban on software development projects. Robot. Comput. Integr. Manuf. 2017; 43:59–67

Fleming S, Thompson M, Stevens R, Heneghan C, Plüddemann A, Maconochie I, et al. Normal ranges of heart rate and respiratory rate in children from birth to 18 years of age: a systematic review of observational studies. Lancet. 2011; 377(9770):1011-8.

Hsieh HF, Shannon SE. Three Approaches to Qualitative Content Analysis. Qualitative Health Research. 2005;15(9):1277-1288.

Patton MQ. Qualitative research and evaluation methods. Thousand Oaks, CA: Sage, 2002.

Castro David; Perez Paula; Quintero Doris; Castro Javier. “Design of a mobile application for home monitoring of babies with complex congenital heart disease”, Mendeley Data, V1. 2022.

Google Play. Promesa. Versión 1.1. Developed by: Fundación Cardiovascular de Colombia.

Azhar AS, Zaher ZF, Abu-Ouf NM, Al-Ata J, Alsheblie STA. Determinants of successful medical education of caregivers of children with congenital heart diseases. J Saudi Heart Assoc. 2018; 30(1): 28-39.

Sherbourne CD, Stewart AL. The MOS Social Support Survey. Soc Sci Med. 1991; 32(6):705-14.

Birkhoff SD, Smeltzer SC. Perceptions of Smartphone User-Centered Mobile Health Tracking Apps Across Various Chronic Illness Populations: An Integrative Review. J Nurs Scholarsh. 2017;49(4):371-378.

Gramszlo C, Karpyn A, Demianczyk AC, Shillingford A, Riegel E, Kazak AE, et al. Parent Perspectives on Family-Based Psychosocial Interventions for Congenital Heart Disease. J Pediatr. 2019.



Cómo citar

Castro D, Pérez-Rivero P, Quintero Lesmes DC, Castro J. Design of a mobile application for home monitoring of babies with complex congenital heart disease . Revista Cuidarte [Internet]. 7 de octubre de 2022 [citado 19 de junio de 2024];13(3). Disponible en:



Artículos de Investigación




Los datos de descargas todavía no están disponibles.