Access and waiting for ostomy according to people with colorectal cancer: an ethnographic study
DOI:
https://doi.org/10.15649/cuidarte.1175Keywords:
Colorectal Neoplasms, Health Services Accessibility, Unified Health System, Medicalization, Sociology, MedicalAbstract
Introduction: The access of people with colorectal cancer to surgical treatment with stomization implies a difficult itinerary through the network of care, and when accessing the tertiary level in an apprehensive preoperative waiting. Objetive: To know the access and waiting for stomization of people sick with colorectal cancer at the tertiary level of the Brazilian Unified Health System. Materials and Methods:Ethnographic study based on the Sociology of Health, with 8 relatives and 14 patients in a High Complexity Oncology Center, Brazil. Data were collected between October 2018 to March 2019, with participant and non-participant observation, field diary recording, and semi-structured interview. Statements and ethnographic notes after triangulation were subjected to inductive content analysis in six steps. Results:"The history of illness interspersed with difficulties" and "The losses in the process of patience-resilience along the way" were apprehended. Discussion: Three types of access were reported, as well as the sub-meanings "I paid privately" and the diagnostic delay mobilized by official and unofficial means in the Unified Health System. Social capital is pressing, a network without which users' access is impacted. At the tertiary level while waiting for stomization, resilience was unveiled not as a heroic resource, but as a personal and collective resource. Conclusion: The access counted on relational mobilization and a range of paths to hospitalization with part of the journey in supplementary health, while the waiting for stomization mitigates patience making resilience a beneficial resource in the wait for surgical programming.
How to cite this article: Correa Júnior, Antonio Jorge Silva; Souza, Thaís Cristina Flexa; de Santana, Mary Elizabeth; Sonobe, Helena Megumi; Pimentel, Ingrid Magali de Souza; Carvalho, Jacira Nunes. Acesso e aguardo pela estomização segundo pessoas com câncer colorretal: estudo etnográfico. Revista Cuidarte. 2022;13(3):e1175. http://dx.doi.org/10.15649/cuidarte.1175
References
Silva MJSD, Lima FLTD, O'Dwyer G, Osorio-de-Castro CGS. Política de atenção ao câncer no brasil após a criação do Sistema Único de Saúde. Rev Bras Cancerol. 2017; 63(3): 177-87. http://www1.inca.gov.br/rbc/n_63/v03/pdf/03-artigo-politica-de-atencao-ao-cancer-no-brasil-apos-a-criacao-do-sistema-unico-de-saude.pdf
Instituto Nacional de Câncer José Alencar Gomes da Silva, INCA. Estimativa 2020: incidência de câncer no Brasil. Rio de Janeiro: INCA, 2019. https://www.inca.gov.br/sites/ufu.sti.inca.local/files//media/document//estimativa-2020-incidencia-de-cancer-no-brasil.pdf
Oliveira MMD, Latorre MRDO, Tanaka LF, Rossi BM, Curado MP. Disparities in colorectal cancer mortality across Brazilian States. Rev bras epidemiol. 2018; 21: e180012. http://dx.doi.org/10.1590/1980-549720180012
Lima BC, Silva LFD, Góes FGB, Ribeiro MTS, Alves LL. O itinerário terapêutico de famílias de crianças com câncer: dificuldades encontradas neste percurso. Rev gaúcha Enferm. 2018; 39: e20180004. https://dx.doi.org/10.1590/1983-1447.2018.20180004
Brustolin A, Ferretti F. Therapeutic itinerary of elderly cancer survivors. Acta paul enferm. 2017; 30(1): 47-59. http://dx.doi.org/10.1590/1982-0194201700008
Brandenbarg D, Groenhof F, Siewers IM, Van der Voort A, Walter FM, Berendsen AJ. Possible missed opportunities for diagnosing colorectal cancer in Dutch primary care: a multimethods approach. Br J Gen Pract. 2018; 68(666):e54-e62. https://doi.org/10.3399/bjgp17X693905
Carroll CB, Gomide M. Análise de redes na regulação do tratamento do câncer do aparelho digestivo. Cad Saude Publica. 2020; 36(1): e00041518. https://doi.org/10.1590/0102-311X00041518
Horkheimer M, Adorno TW. Sociedade. In: Foracchi MM, Martins JS. Sociologia e sociedade: leituras de introdução à sociologia. Rio de Janeiro: LTC, 2018; p. 222-232.
Fox NJ. Health sociology from post-structuralism to the new materialisms. Health (London). 2015, 20(1):62-74. https://doi.org/10.1177/1363459315615393
Correia T. Revisiting medicalization: A critique of the assumptions of what counts as medical knowledge. Frontiers Soc. 2017; 2:14. https://doi.org/10.3389/fsoc.2017.00014
Goffman E. Manicômios, Prisões e Conventos. São Paulo: Editora Perspectiva; 2001. https://app.uff.br/slab/uploads/Manicomios-prisoes-e-conventos.pdf
Souza DF, Silvino ZR. The Sociology of Pierre Bourdieu: theoretical potential for the subfield of nursing. Rev Bras Enferm. 2018; 71(4):2055-9. http://dx.doi.org/10.1590/0034-7167-2016-0505
Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007; 19(6): 349-57.
https://doi.org/10.1093/intqhc/mzm042
Programa das Nações Unidas para o Desenvolvimento (PNUD). Instituto de Pesquisa Econômica Aplicada (IPEA). Atlas de Desenvolvimento Humano. PNUD, IPEA. 2010. https://www.ipea.gov.br/portal/index.php?option=com_content&view=article&id=36687
Mcintosh MJ, Morse JM. Situating and constructing diversity in semi-structured interviews. Glob Qual Nurs Res. 2015; 2:1-12.https://doi.org/10.1177/2333393615597674
Correa Júnior AJS. Entrevistas do relatório para a dissertação "Os sentidos do adoecimento pelo câncer colorretal: Estudo etnográfico". Figshare Dataset. 2022. https://doi.org/10.6084/m9.figshare.21075967.v3
Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006; 3(2): 77-101.http://dx.doi.org/10.1191/1478088706qp063oa
Sy A. La medicalización de la vida: hibridaciones ante la dicotomía Naturaleza/Cultura. Cien Saude Colet. 2018; 23(5):1531-39. http://dx.doi.org/10.1590/1413-81232018235.10212016
Dobson CM, Russell AJ, Rubin GP. Patient delay in cancer diagnosis: what do we really mean and can we be more specific?. BMC Health Serv Res. 2014; 14(1):387. https://doi.org/10.1186/1472-6963-14-387
Giovanella L. Basic health care or primary health care?. Cad Saúde Pública. 2018; 34(8). http://dx.doi.org/10.1590/0102-311x00029818
Viacava F, Oliveira RADD, Carvalho CDC, Laguardia J, Bellido JG. SUS: supply, access to and use of health services over the last 30 years. Cien Saude Colet. 2018; 23(6):1751-62.http://dx.doi.org/10.1590/1413-81232018236.06022018
Phillips M. Assets and affect in the study of social capital in rural communities. Sociol Ruralis. 2016; 56(2):220-47. https://doi.org/10.1111/soru.12085
Cheshire L, Esparcia J, Shucksmith M. Community resilience, social capital and territorial governance. Ager. 2015; (18):7-38. http://dx.doi.org/10.4422/ager.2015.08
Houaiss A, Villar MS, Franco FMM, Instituto Antônio Houaiss de Lexicografia. Pequeno dicionário Houaiss de Língua Portuguesa. São Paulo: Moderna, 2015.
Solano JPC, Silva AG, Soares IA, Ashmawi HA, Vieira JE. Resilience and hope during advanced disease: a pilot study with metastatic colorectal cancer patients. BMC Palliat Care. 2016; 15(1):70. https://doi.org/10.1186/s12904-016-0139-y
Estêvão P, Calado A, Capucha L. Resilience: moving from a heroic notion to a sociological concept. Sociologia, Problemas e Práticas. 2017; (85):9-25. http://dx.doi.org/10.7458/SPP20178510115
Gomide MFS, Pinto IC, Bulgarelli AF, Santos ALPD, Serrano Gallardo MDP. A satisfação do usuário com a atenção primária à saúde: uma análise do acesso e acolhimento. Interface. 2018; 22(65):387-98.http://dx.doi.org/10.1590/1807-57622016.0633
Borges JA, Quintão MMP, Chermont SSMZ, Mendonça Filho HTF, Mesquita ET. Fadiga: um sintoma complexo e seu impacto no câncer e na insuficiência cardíaca. Int J Cardiovasc Sci. 2018; 31(4):433-42. http://dx.doi.org/10.5935/2359-4802.20180027
Brandenbarg D, Korsten JHWM, Berger MY, Berendsen AJ.The effect of physical activity on fatigue among survivors of colorectal cancer: a systematic review and meta-analysis. Support Care Cancer. 2018; 26(2):393-403. https://doi.org/10.1007/s00520-017-3920-4
Van den Beuken-Van MH, Hochstenbach LM, Joosten EA, Tjan-Heijnen VC, Janssen DJ. Update on prevalence of pain in patients with cancer: systematic review and meta-analysis. J Pain Symptom Manage. 2016; 51(6):1070-90. https://doi.org/10.1016/j.jpainsymman.2015.12.340
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