Increasing access to comprehensive cleft lip and/or palate care in Colombia
DOI:
https://doi.org/10.15649/cuidarte.4277Keywords:
Cleft Lip, Cleft Palate, Comprehensive Health Care, Health Services AccessibilityAbstract
Highlights
- Cleft lip and palate are the most common congenital cranial malformations, with a prevalence of 3.27 per 10,000 inhabitants in Colombia.
- Comprehensive care for cleft lip and/or palate requires a multidisciplinary team working in a coordinated way from pregnancy to adulthood.
- Despite almost universal insurance coverage in Colombia, people in rural areas and those with lower socioeconomic status have difficulty accessing comprehensive care for this condition.
- Fundación Operación Sonrisa has developed strategies to improve access to comprehensive treatment through surgical programs and local capacity building.
Cleft lip and palate are the most common congenital cranial malformations. They occur in about 1.7 of every 1000 live births1. Although it is likely to be under-reported, it is estimated that the prevalence of this condition in Colombia is 3.27 per 10,000 inhabitants2.
Comprehensive care for these malformations requires multiple interventions by a specialized multidisciplinary team from pregnancy through adulthood3-6. Ideally, these services should be organized around the patient's needs and provided by an interdisciplinary team of experts located in the same place who communicate directly with each other to make decisions together6.
How to cite this article: Van der Werf Laura, Guerrero Cortés Edna Lucia, Barreto Gaitán Vivian Alexandra, Diaz Gil Andrea Carolina, Sarmiento Viasus Olga Isabel, Tibaquirá Diana Carolina, Herrera Cepeda Álvaro Mauricio. Increasing access to comprehensive cleft lip and/or palate care in Colombia. Revista Cuidarte. 2024;15(3):e4277. https://doi.org/10.15649/cuidarte.4277
References
Mossey PA, Little J, Munger RG, Dixon MJ, Shaw WC. Cleft lip and palate. The Lancet. 2009;374(9703):1773-85. https://doi.org/10.1016/S0140-6736(09)60695-4
Rengifo Reina HA, Guarnizo Peralta B. Analysis of the Prevalence and Incidence of Cleft Lip and Palate in Colombia. Cleft Palate Craniofacial J. 2020;57(5):552-559.https://doi.org/10.1177/1055665619886455
Frederick R, Hogan AC, Seabolt N, Stocks RMS. An Ideal Multidisciplinary Cleft Lip and Cleft Palate Care Team. Oral Dis. 2022;28(5):1412-7. https://doi.org/10.1111/odi.14213
Mink van der Molen AB, van Breugel JM, Janssen NG, Admiraal RJ, van Adrichem LN, Bierenbroodspot F, et al. Clinical practice guidelines on the treatment of patients with cleft lip, alveolus, and palate. J Clin Med. 2021;10(21):4813. https://doi.org/10.3390/jcm10214813
Losee JE, Kirschner RE. Comprehensive Cleft Care, 2nd ed. New York: Thieme. Volume One ;2016. Available from: http://www.thieme-connect.de/products/ebooks/book/10.1055/b-004-140252
Cohen M. Fundamentals of Team Care. In: Comprehensive Cleft Care, 2nd ed. New York: Thieme. Volume Two; 2016. Available from:http://www.thieme-connect.de/products/ebooks/book/10.1055/b-004-140252
Allori AC, Kelley T, Meara JG, Albert A, Bonanthaya K, Chapman K, et al. A Standard Set of Outcome Measures for the Comprehensive Appraisal of Cleft Care. Cleft Palate Craniofac J. 2017;54(5):540-54. https://doi.org/10.1597/15-292
Arrivillaga M. Assessing health services accessibility in Colombia: Beyond universal health coverage. Eur J Public Health. 2020;30(5):ckaa166.1391. https://doi.org/10.1093/eurpub/ckaa166.1391
Ministerio de salud y protección social. Resolución 2366 de 2023.Consulta: Agosto 15, 2024. Disponible en: https://www.minsalud.gov.co/Normatividad_Nuevo/Resolucio%CC%81n%20No%202366%20de%202023.pdf
González-Carrera MC, Ruiz JA, Mora-Díaz II, Pereira De Souza D, Restrepo-Pérez LF, Bendahan Z, et al. Parents’ Perception of Barriers to the Comprehensive Management of Children With Cleft Lip and Palate in Bogota, Colombia. Cleft Palate Craniofacial J. 2023;60(7):810-22. https://doi.org/10.1177/10556656221082759
Cerón Zapata AM, Segura-Cardona AM, Mejía-Ortega LM. Accessibility to Interdisciplinary Treatment in Individuals with Cleft Lip and/or Palate in Medellín, Colombia, eg2021. J Community Med Public Health. 2023;7(319):2577-2228. https://doi.org/10.29011/2577-2228.100319
Mc Donald-McGinn, Donna M, DiCairano, Lauren, Mennuti, Michael. Prenatal and Genetic Counseling. In: Comprehensive Cleft Care, 2nd ed. New York: Thieme: Volume One; 2016.
García MA, Imbachí L, Hurtado PM, Gracia GM, Zarante I. Detección ecográfica de anomalías congénitas en 76.155 nacimientos en las ciudades de Bogotá y Cali, en el periodo 2011-2012. Biomédica 2014;34(3):379-386. https://doi.org/10.7705/biomedica.v34i3.2259
Saldarriaga-Gil W, Ruiz-Murcia FA, Fandiño-Losada A, Cruz-Perea ME, Isaza-de-Lourido C. Evaluation of prenatal diagnosis of congenital defects by screening ultrasound, in Cali, Colombia. Colombia Médica. 2014;45(1):32-38. https://doi.org/10.25100/cm.v45i1.1332
Restrepo-Cano GA. Diagnóstico prenatal de anomalías congénitas: ¿se cumple esta política en Colombia? Ces Med. 2018;32(3):226-234. https://doi.org/10.21615/cesmedicina.32.3.4
Cerón-Zapata AM, Martínez-Delgado MC, Calderón-Higuita GE. Maternal perception of breastfeeding in children with unilateral cleft lip and palate: A qualitative interpretative analysis. Int Breastfeed J. 2022;17(1):88. https://doi.org/10.1186/s13006-022-00528-y
Dailey S. Feeding and Swallowing in Children With Cleft and Craniofacial Anomalies. In: Comprehensive Cleft Care. 2nd ed. New York: Georg Thieme Verlag; 2016. p.303-305. Available from: http://www.thieme-connect.de/products/ebooks/book/10.1055/b-004-140252
Hanna JS, Herrera-Almario GE, Pinilla-Roncancio M, Tulloch D, Valencia SA, Sabatino ME, et al. Use of the six core surgical indicators from the Lancet Commission on Global Surgery in Colombia: a situational analysis. Lancet Glob Health. 2020;8(5):e699-710. https://www.thelancet.com/journals/langlo/article/PIIS2214-109X(20)30090-5/fulltext
Politis GD, Gregory G, Yudkowitz FS, Fisher QA, Bhettay AZ, Wexler A. 2020 guidelines for conducting plastic reconstructive short-term surgical projects in low-middle income countries. Paediatr Anaesth. 2020;30(12):1308-21. https://doi.org/10.1111/pan.13960
Organización Mundial de la Salud. Lista OMS de verificación de la seguridad de la cirugía: manual de aplicación (1a edición): la cirugía segura salva vidas. 2008. Consulta: Julio 26, 2024. Disponible en https://iris.who.int/bitstream/handle/10665/70083/WHO_IER_PSP_2008.05_spa.pdf?sequence=1&isAllowed=y
Operation Smile inc. Medical Global Standards 2020 [Internet]. 2020. [Cited: 2024 July 26] Available from: https://www.operacaosorriso.org.br/wp-content/uploads/2020/06/2020-Medical-Global-Standards_compressed.pdf
Cabrera Pinto VG, Andrade Riera SM, Alvear MC, Pumisacho Gualoto DM, Gavilanes Navarrete JA, Vela Yar JS, et al. Anestesia en el Paciente Pediátrico. Actualización en Anestesiología. Vol. 10. Quito, Ecuador: Cuevas Editores; 2024.
Reigart JR, Chamberlain KH, Eldridge D, O’Brien ES, Freeland KD, Larsen P, et al. Peripheral Intravenous Access in Pediatric Inpatients. Clin Pediatr (Phila). 2012;51(5):468-72. https://doi.org/10.1177/0009922811435164
Mora AMB, Casallas NG, Castiblanco TLM, Santiesteban LSS, Rueda WDV. Manual de procesos de instrumentación quirúrgica para el tratamiento de la patología de labio fisurado y paladar hendido. 2020. Consulta: Julio 26, 2024. Disponible en: https://repositorio.unbosque.edu.co/server/api/core/bitstreams/8180746a-11be-4bfa-b96a-3ac2c891b7ac/content
Frey KB. Developing a Core Curriculum: Surgical Technologists Share Their Experience. Biomed Instrum Technol. 2011;45(6):441–444. https://doi.org/10.2345/0899-8205-45.6.441
El-Shazly M, Taha A, Fayyaz GQ. Tips and Tricks in Cleft Palate Repair. In: Fayyaz, G.Q. (eds) Surgical Atlas of Cleft Palate and Palatal Fistulae. Springer, Singapore. 2022. https://doi.org/10.1007/978-981-15-8124-3
Puente Espel J, Hohman MH, Winters R. Cleft Palate Repair. [Updated 2023 Jul 4]. In: StatPearls Publishing. Treasure Island (FL); 2024. Available from: https://www.ncbi.nlm.nih.gov/books/NBK570586/
Sosa-Vesga CD, Arenas-Camacho LD, González CAM, Nazar-Meneses FJ, Pimiento Macías AF, Téllez Gamarra DA, et al. Complicaciones postquirúrgicas en intervenciones correctivas de labio y paladar hendido en pacientes pediátricos de un hospital de tercer nivel en Bucaramanga, Colombia 2013-2016. Medicas UIS. 2018;31(2):25-32. https://doi.org/10.18273/revmed.v31n2-2018003
Marty Grames L. Speech Therapy for Children With Cleft Palate. In: Comprehensive Cleft Care, Volume 1. 2nd ed. New York: Georg Thieme Verlag; 2016. Available from: http://www.thieme-connect.de/products/ebooks/book/10.1055/b-004-140252
González Carrera MC, Gaona Beltrán AM, Gamboa Martínez LF, Martignon Biermann S. Epidemiología de caries dental (ICDAS) en individuos colombianos con labio y paladar hendido. Univ Odontológica. 2013;32(68):125-132. https://revistas.javeriana.edu.co/index.php/revUnivOdontologica/article/view/SICI%3A%202027-3444%28201301%2932%3A68%3C125%3AECDLPH%3E2.0.CO%3B2-D
Antonarakis G, Palaska PK, Herzog G. Caries prevalence in non-syndromic patients with cleft lip and/or palate: a meta-analysis. Caries Res. 2013;47(5):406-13. https://doi.org/10.1159/000349911
Cheng LL, Moor SL, Ho CT. Predisposing factors to dental caries in children with cleft lip and palate: a review and strategies for early prevention. Cleft Palate Craniofac J. 2007;44(1):67-72 https://doi.org/10.1597/05-112
Worth V, Perry R, Ireland T, Wills A, Sandy J, Ness A. Are people with an orofacial cleft at a higher risk of dental caries? A systematic review and meta-analysis. Br Dent J. 2017;223(1):37-47. https://doi.org/10.1038/sj.bdj.2017.581
Restrepo-Zea JH, Castro-García PA, Casas-Bustamante LP, Betancur-Romero JE, López-Hernández MA, Moreno-López C, et al. Oral health services coverage in Medellín, 2015. Rev Fac Odontol Univ Antioquia. 2020;32(2):6-17. https://doi.org/10.17533/udea.rfo.v32n2a1
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