Perceptions and feelings of pregnant women undergoing outpatient follow-up for toxoplasmosis
DOI:
https://doi.org/10.15649/cuidarte.3161Keywords:
Toxoplasmosis, Pregnancy, Infectious Disease Transmission, Vertical, Toxoplasmosis, Congenital, Delivery of Health CareAbstract
Highlights
- Pregnant women with toxoplasmosis experienced fear, distress, and uncertainty about the repercussions and complications of the disease, especially for the newborn.
- These negative feelings were influenced above all by the insufficient support provided by primary care during prenatal care, producing a scenario of misinformation.
- The welcoming offered by the multiprofessional secondary care team was essential for understanding the disease and its implications for the mother-child binomial.
- Using health education strategies, beliefs and taboos about the disease were demystified and gave way to assertive prevention and care practices.
Introduction: Toxoplasmosis persists as a neglected disease and poses a challenge to public health, especially due to the risk of vertical transmission, which can lead to countless biological complications for the newborn and to psychological and emotional repercussions for the mother. Objective: To understand the perceptions and feelings of pregnant women affected by toxoplasmosis undergoing outpatient follow-up. Materials and Methods: A qualitative and exploratory study developed with 12 women with gestational toxoplasmosis undergoing specialized outpatient follow-up in a municipality from the state of Paraná, Brazil. The data were collected through semi-structured individual interviews and subjected to content analysis, supported by descending hierarchical classification. Results: The pregnant women experienced situations ranging from diagnosis and treatment to preventing the disease in the child and family. These experiences generated fear, distress and uncertainty about the disease, which were not adequately addressed during prenatal assistance in primary care. However, the pregnant women emphasized the importance of the multiprofessional team at the secondary level in monitoring and health education. Discussion: Although the pregnant women felt confident about the treatment and its implications for the child's health, discovering the diagnosis impacted their everyday lives and those of their families, especially due to lack of reliable information about toxoplasmosis and to the absence of emotional support at the primary level. Conclusions: There was a temporary scenario of disinformation among these women, who were not properly guided and supported. However, the guidelines offered in secondary health care were essential for improving knowledge and practices in health.
How to cite this article: Silva, Viviane Yumi Nakahara da; Lima, Lucas Vinícius de; Pavinati, Gabriel; Magnabosco, Gabriela Tavares; Gil, Nelly Lopes de Moraes; Shibukawa, Bianca Machado Cruz. Perceptions and feelings of pregnant women undergoing outpatient follow-up for toxoplasmosis Revista Cuidarte. 2024;15(1):e3161. http://dx.doi.org/10.15649/cuidarte.3161
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